Living with Ehlers-Danlos Syndrome: How I ran 50 miles to support Breathworks
This blog shares my journey with Ehlers-Danlos Syndrome and celebrates the achievement of completing a 50 mile run to raise funds for Breathworks…
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Being bendy
Posts filed under Being bendy.
Being bendy posts
17 posts in Being bendy
Cross-training with EDS to manage injuries
Yesterday I shared on my Instagram feed about having to switch all my training over to bike-based for cardio and lower body/core for strength training due…
Long distance work travel with Ehlers-Danlos Syndrome
In my job I have the great privilege of travelling quite a bit, sometimes long distance. Today I’m writing this from my hotel room in São Paulo, after…
My first long distance race - Endure24 Reading
This weekend after a culmination of nearly a year's training, I completed my first ever marathon - and indeed ultramarathon - race at Endure24 Reading. A…
When did you learn how to run properly?
During my training for Endure24 I started to pick up small but frustrating problems with my body - painful hip flexors and quads, a Mortons Neuroma, and…
Becoming a bilingual typist - switching from QWERTY to Maltron
Making the switch from QWERTY to Maltron Keyboard Layouts - one handed keyboard, two handed keyboard and all the fun & challenges involved!…
How my wheelchair gave me back my life, my health, and my dignity
Today is #InternationalWheelchairDay which has me reflecting just how much my life has changed since I decided to start using a wheelchair back in 2014…
Breaking the Boom and Bust cycle of pain and activity
One of the most fundamental tips I learned over the years was how to break the 'Boom and Bust' cycle of pain and activity. It has taken many years of…
How businesses can support people with #EhlersDanlosSyndrome to be well at work
Some ways in which businesses can support a team member who has Ehlers Danlos Syndrome with being well at work…
I ran a mile every day for 40 days .. and so can you! #rwrunstreak
What I have taken away from running a mile every day as part of the Runner's World Run Streak #RWRunStreak…
What lies behind being so well at the moment
I'm pretty well at the moment, here's how that happened (and what that means for my general health!)…
What is Ehlers-Danlos Syndrome? (and how it affects me)
What is Ehlers-Danlos Syndrome and how does it affect me? An overview of the EDS condition and the ways it affects my life…
Being believed and getting a diagnosis of EDS
Sadly, many people experience a lot of suffering before they are actually diagnosed with Ehlers-Danlos Syndrome. Some of the classifications are picked up…
Introducing Ehlers Danlos Syndrome (EDS) Awareness Month
The month of May is a special month to me - it's a month where the condition which I live my life with is showcased through Ehlers-Danlos Syndrome…
Life is better with wheels!
Being British has it's advantages. Tea, for one thing, is something I really miss when I'm travelling the world ... good old fashioned tea the way my mum…
My journey with chronic pain
I was largely motivated to write this blog post after reading this post - 6 things about chronic pain you didn't know you knew - and just to be clear…
It's just like riding a bike apparently ... #bikeweek
They say that a good boss should lead by example, so for the next week I am making a real effort to cycle into work each day, as part of 'Bike Week'. Bike…
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